My name is Ruth.I live in the UK and had my first Morgellons symptoms on Boxing Day night 2014. Late in the evening, I developed severe itching on one forearm. It very quickly became swollen and inflamed. I thought I had either been bitten or had been exposed to an allergen. This was a new thing for me. I got through that night with hydrocortisone cream and antihistamines.
The next day doing research online led me to consider scabies. This caused me anxiety because of the visitors I had in the house over Christmas. Meanwhile, my symptoms developed to more rashes and itching. I had to do a supermarket shop and saw some anti-itch cream, Eurax which I bought as it was New Year coming up, no time to go to the doctor. Online I saw that this could also be a treatment for scabies so did a head to toe coverage treatment with it. Meanwhile, I started to research on how to deal with scabies and started decluttering, plastic bagging and deep cleaning. I became exhausted because of anxiety re visitors staying and not wanting to pass anything on to them, lack of sleep and the constant cleaning. About two weeks later I had a new symptom. I felt a sharp stinging pain on one finger, went across to a strong light to see what had happened and saw something small and black coming out of my skin and it then disappeared back into the skin. I then panicked more thinking that I may have mites or some other parasite. It was the weekend and I went to see an emergency doctor who was not convinced but suggested scabies treatment again. I did that and repeated it again seven days later. However talking to another medical friend, I was told 'but you never see scabies on your skin without magnification' so I knew it could not be that.
I continued to see black bits emerging from my skin and searched in my daughter's bedroom for a toy microscope she no longer used. My husband had been unwilling to look at any of my 'black bits' managed to get the microscope working and was then more interested in looking at a specimen if I could show him one in the process of emerging. He saw this and we managed to get it under the microscope and then we saw what it was, not any sort of insect looking thing
but most definitely a bundle of fibres.
I then started research online on what to do about this, discovered the name for it and found out that there was no help medically in the UK, apart from possibly a London dermatologist but even this was possibly no real help.
My husband wanted me to go to a dermatologist. I was very wary of this knowing that many others had been given a diagnosis of delusional parasitosis. I did eventually go to see a dermatologist that my husband said was very open-minded. By the time I saw him I was well on the way to being better but I told him what had happened and what I had done. He looked at me and very carefully said that none of the things I had seen on my skin had come out of my skin. Even though I was so much better and it really didn't matter that he wasn't going to help me, I still found it very traumatising to have my symptoms unacknowledged. I was very surprised at how upsetting I found it. And I hadn't even taken any samples in with me which apparently is the sign to them to give a psychiatric diagnosis.
So I looked to online sites for advice. I looked at the howicuredmorgellons site but wasn't sure I could do all of the suggested protocol, or source everything in the UK (as it is an American site). I eventually find a site by a Mr. Commonsense and tried to do all I could that he suggested. This was a poor man's protocol. I still didn't do everything he suggested but I did get Kleen Green! It was wonderful to find a UK supplier! I used it on my skin and for cleaning (and still do today). The Kleen Green helped on any rashes/itching that I had. It helped to get more black bits out of my skin.
I carried on with this for the next six months. However that summer in the sunshine I was getting large amounts of fibres coming out. I also worried I was seeing fibres in my urine. As a Christian, I had prayed about this from the beginning asking for God's help and guidance. At this point I felt very desperate, what I was doing wasn't working and I felt very lonely and in need of a support group. I looked again online, looked again at howicuredmorgellons and on that forum. For the first time looking there I saw a thread, Welcome To The UK And All Of Europe. For me it meant I was welcome there, would be able to do it all from the UK with support and I started to read through the forum threads and all the articles on site. During the process of reading it all I slowly became confident that this was the right way for me to proceed.
After posting on the forum I got lots of advice. I followed the protocol like a handbook on how to get well. It wasn't easy or cheap. I found the change to diet very hard at first (no sugar, bread, rice, potato, any flour except coconut flour) Now its fine and I will keep eating this way for life as I know its healthy for me. More details are given in the diet I followed below. The protocol consisted of the change to diet, supplements, MMS, rest and sleep, getting rid of mould. I also used oregano oil which the best quality can be bought from online at www.natureswayhyde.co.uk. It was all about healing from the inside out, so although all the purging was uncomfortable it was a necessary part of getting the disease out of my body. It actually got worse to begin with as my immune system got stronger and was able to get more out of my body. I had the scratches and cuts as well. I had very small sores but they quickly healed using Kleen Green/MMS/essential oils.
I have never been able to get Lyme testing but its possible I've had Lyme and co-infections or maybe I had had some of those co-infections without the Lyme. I don't know. Although I am now well I am continuing to take the supplements but no longer take the MMS or Olive Leaf. I followed every part of the protocol and nearly three years later can say that I am well again. In some ways more healthy than I have been for a while.
I have developed a strong interest in essential oils because I having used them for Morgellons and am continuing to learn about how to use them for health.
If you are interested in knowing more about how I progressed on the protocol you can read on the howicuredmorgellons forum under the Welcome To The UK thread. I posted an update each months saying how I was getting on and my ups and downs with symptoms and healing.
I am so grateful to the makers of Kleen Green and for the UK suppliers for recognising Morgellons as a real disease and for the support and help that they give to those suffering from the condition.
Here are some ways I used Kleen Green:
WAYS I USED KLEEN GREEN FOR MORGELLONS
I used Kleen Green to clean everything. I searched the house for mould and used Kleen Green to clean it. In my house I found mould under toilet cisterns, in showers, on walls, on window frames. I cleaned mould by spraying KG onto the surface then wiping with toilet paper and flushing paper down the toilet.
Whereas in the past I would clean with a polish spray and then dust, I now spray with KG then wipe with a cloth on hard surfaces. I spray soft furnishings like sofas, curtains and also carpet (after hoovering).
I also use the KG to spray inside shoes and boots after use and also spray coats and jackets that are not washed frequently.
In the early days of Morgellons I used Kleen Green to clean the walls and ceiling of the room I slept in and lived most in. I also used KG to clean out the walls and shelves of my wardrobe and also all drawers.
I spray KG over everything, e.g. my bookshelves – all the books get a spray over them each week and come to no harm!
I use KG to mop the floors.
I use KG to spray over my plastic mattress cover each time I change my sheets and give the sides of my bed a good spray over.
When I had plastic duvet covers I also cleaned those with KG.
I now add essential oils to my KG. Its a pleasant smell and adds to the cleaning power.
CHANGES TO MY DIET
This also means no fruit initially. After a year on the protocol, I started to try adding berries green apples and rhubarb. I now eat berries, watermelon, pineapple, plums. For sweetening I use stevia.
This means no potato, rice, wheat, no flour except coconut.
I made bread with coconut flour and ground almonds. I ate small amounts of oats. I was ok eating pulses but not everyone is. I was ok with quinoa which I used to make veggie burgers to eat with eggs for breakfast.
My diet consisted mainly of salad/vegetables with a small amount of protein. Avocados are good for us but of course expensive. I ate eggs every day for breakfast, salad for lunch with chopped raw garlic sprinkled over and cooked vegetables for tea. For salad dressing, I used half a lime and a good olive oil. Lots of garlic in everything. For cooking in a pan, I use coconut oil or butter. In cold weather, I had soup for lunch made with lots of vegetables, coconut milk and spices. If you eat meat to buy it on the bone and boil the bones to make bone broth to make into soup.
I ate probiotic organic yoghurt but otherwise stuck to non-dairy.
Now I can eat cheddar matured over 12 months.
I basically stuck to a paleo/alkaline diet but also cut out fruit. The one pudding I made for my elderly mum to eat with her is fruit crumble made with oats, ground almonds and butter. This is the one time I use Truvia.
After a year on treatment, I added in raw cacao powder and made a fudge with almond butter for treats.
I eat nuts, particularly almonds if I feel hungry. But after getting over the sugar cravings which took a couple of months I found I was not often feeling hungry.
I drink a lot of water. That is my main drink. In the early days I added lemon juice to it, but take care of your teeth with this. I also drink a lot of herbal teas cistus in canus is good. I gave up coffee for over two years. I now have just one cup a day after lunch. I gave up Yorkshire tea (black tea) also and now drink it very rarely.
Green tea is good for us.
So although I have added some things in now I feel better, my diet has not changed that much. And that is because as a result of Morgellons I've learnt so much about eating healthily and am really happy with how I feel. I no longer feel that I'm missing out by not eating cake, doughnuts, etc. And I was the one who would always make puddings for guests/family and lots of cake. I still sometimes cook these things for other people but am happy not eating it myself.
Testimonial by Patricia
A true, on going story of the personal stuggle and suvival of someone suffering Morgellons/Lyme disease
Life’s Little Blighters
In my wildest dreams I could never have imagined this happening to me – but it did. This is a true account of how I contracted a controversial and bizarre disease.
Thursday evening, 5th March 2015
I was relaxing, watching some TV when I became aware of something crawling around the nether regions of my body. It felt like a flea but I didn’t have any animals so I guessed it wasn’t that. Before long, another joined it, then another and another, until it felt like an army of little creatures scurrying around and nipping me – I could feel pin-prick sensations. I was horrified! My first reaction was to run a hot bath, throw in a bucketful of salt and leap in to scrub my body and get rid of the tiny creatures, whatever they were.
After the bath it felt wonderful to be relieved of the little pests. I went to bed and began reading a book. Not for long though as more bugs began to emerge. I wondered what kind they were and tried to search for them but as I couldn’t see anything I thought they must be microscopic like the scabies mite. The feeling of them scurrying around me was very unsettling, so in desperation I went online to search for information. I discovered that Permethrin Dermal Cream, a pesticide that comes in a small tube, is used for scabies, nowadays. This should get rid of them I thought and ordered two tubes online to start with. But as it would take a few days for delivery, I had to pop into a Boots Chemist the following day and buy two more tubes over the counter so I could begin treatment immediately.
At over ten pounds per tube, I thought it was rather expensive but with the way I was feeling at that time, I would gladly have paid a hundred pounds for the cream. I was desperate to get rid of these things – it was like gold dust to me. I followed the instructions and rubbed the cream all over my body. As soon as they come out of their hiding place they will die, I thought. I’m not sure if the cream was very effective as the things just kept coming but I felt that I needed to be doing something positive to try and banish them from my body. As the days passed, I noticed a pattern forming in their behaviour. The mornings were quiet but they would emerge in the evenings and sometimes in the early afternoons. They seemed not to bother me when I was active but as soon as I was sedentary, they would start crawling.
Sunday arrived and my daughter sent me a text message about doing the school run on the Monday as I usually helped her out when she was working. I replied saying that perhaps I shouldn’t go up to her place and mix with the children for a while or at least not until I’m rid of the creepy-crawlies I was suffering with. She was straight on the land line to me for further information. I explained to her what I was experiencing and she suggested that I make an urgent appointment with my GP. An hour later my other daughter phoned and also pressed me to see my doctor. I kept putting it off because I didn’t think a doctor could help me and it would take at least two weeks to get an appointment. But they pressurised me so much I finally succumbed.
Tuesday 10th March 2015
Since I would have to wait up to two weeks for an appointment with my own doctor, I was forced to make an emergency one to see the duty doctor, which happened to be a locum. I did not want to see any doctor and have to tell them that I had bugs coming out of me. Well, you wouldn’t, would you? It was far too embarrassing. But that’s what I had to do.
So...the locum, Doctor X, calls me in. ‘How can I help?’
‘Erm...what does it say on the computer about my problem?’
He looks at the screen, ‘It says you have a rash.’
‘It does? Oh.’ Well, the lovely receptionist who made the
appointment for me earlier that morning had asked for an indication as to the nature of my problem. I said that I had a bug problem which might be scabies but I wasn’t sure. However, she thought it sounded better to say I had a ‘rash’ instead. So...big dilemma, the doctor wants to see evidence of a rash. Well, I was beginning to feel a bit hot under the collar, so I pointed to my neck and chest.
‘That’s not a rash.’
‘But I do have some little red dots and small pimples around my waist and on my back.’ I lifted my jumper to reveal them.
‘I can’t see any rash.’
‘Well...I think have some kind of bug infestation. I think an insect has crawled inside me and laid eggs, which are now hatching out and scurrying around my body and biting me.’
He gives me a funny look. ‘I’d better examine you then. Hop onto the couch.’
I didn’t feel comfortable with his attitude and thought he was rather brusque, so I declined the exam. He asked if I’d prefer a nurse to examine me, which I reluctantly agreed to. He disappeared for a few minutes and returned with a nurse who performed the honours. Of course, she couldn’t see a thing and I knew she wouldn’t. So I tried again to explain what I was experiencing, saying that I thought I must be infested with some kind of microscopic/parasitic creatures, that you couldn’t see. They both looked at me very strangely as if they thought I was away with the fairies.
Dr. X said, ‘I think you’d better make an appointment with your regular doctor.’ He dismissed me rather rapidly. At that point I was praying that the floor would open up and swallow me. As it didn’t, I was out of there, post-haste!
I made an appointment to see my regular doctor which wouldn’t be for another two weeks. Meanwhile, I kept myself busy trying to deal with my plight. I knew I had something rather unusual and nasty and wasn’t sure if it was contagious or not, so I isolated myself as a precaution. Furthermore, I changed and laundered my clothes, towels and bed-linen every day, while taking a hot bath every evening and showering every morning, scrubbing my body with sulphur soap. This regime kept me very busy and by early evening I was totally exhausted and would retire to bed early.
I also started to check the bath water before pulling the plug, to see what kind of creatures may have emerged. I was expecting to see things with legs, but what I actually saw were very odd indeed. They seemed to be tiny black specks either floating on the surface or settling at the bottom of the bath. I managed to retrieve some of them by using a round cotton-wool pad to hook them out and examining them under a magnifier. They were pin-prick size cotton balls. Mostly black but some were a pinkish colour. I also found the same in my bed. While ironing my bed linen I would see them in the fibres, so I ditched the sheets since I couldn’t pick them out and I felt they’d been contaminated anyway. I then abandoned my bed for the settee.
Monday 23rd March 2015
Finally, I had an appointment with my regular GP. It seemed to me that Dr. Y. had already been informed about me and my problem. As soon as I sat down, she turned to me and said, ‘look...what, do you want from me? I’m just a GP. I don’t have a magic wand.’ I tried to explain my bug problem, telling her when it manifested itself and what I was doing so far to treat myself. She then went on to inform me in a very raised voice, that there was no known insect that lives on the human body other than ‘scabies’ and ‘crabs’ and since I’ve already used Permethrin cream – one tube is sufficient – do I want to see a psychiatrist? I said no. She then asked me if I suffer from compulsive behaviour. Again, I said no.
Dr. Y. calmed down a little after that and started to look at my legs for any bites and suggested that I may have bedbugs.
‘Bed bugs, no, of course not? I’ve never come across those in my life!’
She said, she would refer me to a dermatologist and prescribed me with a tub of Diprobase Emollient for my skin because there is a condition whereby patients can sometimes sense a feeling of crawling insects on or under the skin and the cream would help.
This condition is called ‘Formication’. I replied, saying that what I was experiencing felt very real to me and no, I was not delusional, I didn’t drink alcohol or take drugs. Nor did I suffer with mental problems. She referred me to a Dermatologist and said to go back and see her again in about three weeks time, after Easter. She also suggested that I go home and fumigate my place. I showed her some samples of the odd stuff that I was finding in the bath water and she took some to send away to the lab.
Meanwhile, I went home to search for bedbugs. I was still sleeping on the sofa, so I was able to pull apart the bed frame and do a thorough search. My daughter loaned me a hand held steamer so I steamed every nook and cranny of the bed as well as going around the skirting boards in my bedroom. No signs of any bugs! I reassembled the bed and replaced the mattress and sprayed it with an eco-friendly pest control spray. The following day, I used the Hoover to clean the carpet, moving the smaller items of furniture in doing so. When I moved a pine storage chest at the end of the bed I saw three DEAD bugs on the carpet in the space between the bed and chest, which were a rust-colour, so I thought they must be bedbugs. I picked them up to take a closer look. Sure enough, the grizzly looking things were bedbugs and very dead, so I flushed them down the toilet. Why were they dead, I asked myself? Having seen the bugs, I knew for sure that I needed to fumigate as soon as possible. I went online to order three ‘bedbug bombs’ from a pest control company. As soon as they arrived I followed the instructions of how to set them off. I then locked up and went shopping for two hours. When I returned home I had to open all the windows to air the rooms for several hours.
I was curious to find out about ‘Formication’ and did some research online. I read about a young lady, who went to her doctor because she was seeing fibres coming out of her skin. Her doctor sent her to a psychiatrist, who admitted her into a psychiatric unit for tests. After about three weeks, they found nothing wrong with her brain and discharged her. But she did have parasites. She had ‘Morgellons’ disease, also known as the fibre disease. People who have this experience odd fibres and debris coming out of their skin. Sufferers, usually collect samples as evidence. This is called the ‘matchbox’ syndrome. I thought, OMG, that’s exactly what I’m doing. I thought it all rather odd at the time and soon forgot about it, since I didn’t think it was like my experience.
Saturday 28th March 2015
Today, my washing machine broke down, probably because of the overload of work it had to do. It flooded the kitchen before stopping altogether. So, I had to dash up to Curry’s in Horsham and order a new one, which I could barely afford. The new machine would arrive on Good Friday, 3rd April. Once installed, I would be able to catch up with the laundry over the Easter weekend. In the meantime, I spent the week gardening to keep busy.
Tuesday 7th April 2015
The day after Easter Monday, I had a bleed from my bowel. I thought it was unusual as it hadn’t happened before but knowing that some people suffer with haemorrhoids that bleed, I wasn’t too concerned and would be seeing my doctor again in a week’s time. However, the following day I had another bleed of bright red blood, then again on the third day. When I looked into the toilet bowl to see how much blood there was I saw a bug floating. So...was that the bug that crawled inside me and laid eggs that hatched out into tiny bugs that scurried around my body biting me, as I’d been saying all along? I hooked it out to examine it. It looked a bit like a woodlouse – I couldn’t say for sure. Then I deduced that it had to be a bed bug, since woodlice are harmless creatures and are not bloodsuckers, whereas, bed bugs are after your blood. I’d already been informed that bedbugs lay their eggs on the mattress, so...couldn’t think why it crawled inside me while I was sleeping. However, it was still alive and began to wriggle, which made me jump and I dropped it back down the toilet. I couldn’t be bothered to hook it out again, so I flushed it away.
Thursday 16th April 2015
I had another appointment with Dr. Y. She had a trainee GP with her and was exceptionally pleasant that day. I said that I had a positive update for her and went on to say that she was right about the bedbugs and that after searching I found three dead ones in my bedroom. Because of that discovery, I fumigated all the rooms.
I then told her that I was also right about having bugs coming out of me. I informed her about the ‘bleed’ from my bowel, which happened on three consecutive days before I found a bug floating in the toilet, which I’d hooked out and confirmed it to be a bedbug. I’d then flushed it away. Dr. Y said that because I’d had a ‘bleed’ she would have to refer me, to the ‘urgent two week wait referral system’ and I would get an appointment very quickly to see a consultant at Brighton Hospital. She decided to examine me and didn’t see anything untoward. She also informed me that the samples I’d previously given her for analysing at the laboratory were nothing.
The following day I had a phone call from the appointments officer for the ‘Digestive Diseases Centre’ at the RSCH Brighton. She wanted to make an appointment for me to see Mr. B, the Consultant. I wasn’t able to make Friday 24th so the officer brought it forward.
Tuesday 21st April 2015
My appointment was in the afternoon at Mr. B’s clinic. He needed to have a brief chat before referring me to the Endoscopy Unit for an examination. After discussing my bug problem and the bleed, he disappeared into his office. A young female healthcare assistant helped me onto the couch to prepare me for the exam. When Mr. B came back he inserted something inside me, which I obviously couldn’t see but thought it was a short scope. He said, ‘you’ve got haemorrhoids, we can treat those but the bugs are a mystery.’ He then extracted the instrument, placing a gauze dressing over the area and disappeared again into his office, while I sorted myself out. When he returned, I showed him a sample of a bug that I’d retrieved from the bath water a while back and which I thought at the time, looked as if it would mature into an insect so stored it away with my sample collection. However, when I looked for it again to use as a specimen, I found that it had developed further and now resembled an adult bug. Mr. B looked at it and said very positively, ‘that’s a bedbug.’ He went on to say that they cannot survive in my bowels. I was really pleased to hear that.
When my appointment with Mr. B was over, I had to go to another department across the road, for blood tests. I was feeling a bit moist and uncomfortable from the examination I’d just had so, after the blood tests, I went to the ladies toilets to sort myself out. I took away the gauze dressing, examined it and noticed two eggs on it. I’d seen these many times in the bath water. I believe they must have been dislodged when Mr. B extracted the scope from me. So...I was wondering whether the Consultant noticed any on the scope, perhaps caught up in the ‘gel’ used in such procedures or whether it was missed completely or perhaps there were none on the scope at all. But I definitely saw two on the piece of gauze, which suggested to me that more bugs were waiting to hatch out.
Thursday 23rd to Tuesday 28th April 2015
Two elderly friends from Australia were coming to stay for a few days. They were on a cruise from Dubai to Southampton and would spend a few days with me before going on to Manchester. This had been arranged since before Christmas and I couldn’t put them off. Therefore, I had to be sure that there were no bedbugs to spoil their stay, so a week before their arrival, I fumigated again. I did not want those grizzly, little blighters showing up to embarrass me!
During their stay, I took my guests out and about especially to London to see the sights. On Sunday 26th April, I took them on a tour around the Sussex countryside. It was while on this trip that I had my next bug experience. My scalp became rather itchy. I had been feeling movements in my hair for a while but thought I was imagining it. However, while on this little jaunt my scalp felt as if it was alive with creatures. I couldn’t wait to get home to investigate and prayed that whatever was plaguing me, did not hop onto my guests.
After arriving home, my two friends retired to their room, while I went to my own bathroom to sort out my itchy head. Since I didn’t have any special hair lotions, I mixed a treatment of wild Oregano Oil (very powerful stuff) with Olive Oil and started to apply it to my hair. At this moment it seemed that the creatures had become air-borne and were hovering around me. I couldn’t see anything but they must have touched my skin because I felt a stinging sensation and my skin became red. But the redness soon disappeared. I continued to apply the treatment of oils, massaging it well into the scalp before putting on a shower cap. This should do the trick, I thought.
The following morning I awoke to the feeling of being eaten alive. I felt crawling in my eyelashes. Leaping out of bed I took a cotton make-up pad and wiped my lashes and examined it with a magnifier and saw several black specks. I concluded that since the creatures were not visible to the naked eye, they must be mites. Afterwards, I tried all sorts of hair solutions to try and get rid of them but nothing seemed to work.
Thursday 30th April 2015
After a five week wait, I had an appointment with Dr. S at the Sussex Community Dermatology Service at Haywards Heath for 10:15 a.m. Dr. S asked me about the bug problem that I was experiencing. I told her my story and showed her two samples I’d brought along. The first sample was a bug similar to the one that dropped out of me after the bleed from my bowel. She said that it looked more like a woodlouse, quite different from the reddish, flat-backed male bedbugs that she displayed on her computer screen.
The sample bug I showed her was the same one that the Consultant from the Brighton Clinic had already seen and confirmed to be a bed bug. It was pale and translucent because it hadn’t lived long enough to drink blood and was probably a female, which are different from the males.
The second sample was another one hooked out of the bath water. Dr. S looked at it and said it was nothing but fibres. Well, I’d seen a lot of this fibre stuff that came out of my body. Some of it was pinprick size cotton balls and some seemed to be just bunches of fibres.
Dr. S took a quick look at my anal area and found nothing untoward. What did she expect to see – little creatures popping their heads out and waving little flags? It was 10:30 a.m. They don’t come out to order, only when they want to feed, which is from around early afternoons to evenings. At no time did the Dermatologist examine my skin elsewhere. When I told her that I was having a flexible endoscopy, she said the doctors would be able to suck them out. She then went on to say that I was coping very well in treating myself and to carry on using the emollient and referred me back to my own doctor. I was not impressed!
Thursday 10th June 2015
I had an appointment with Consultant, Mr. W at The Princess Royal Hospital, Haywards Heath, for a flexible endoscopy. Beforehand, I followed the instructions in the information booklet to prepare for it, which included performing an enema two hours before my appointment.
Everything went well during the procedure, which I watched on the computer screen. However, when the consultant was extracting the flexible scope that was retroflexed in the rectum, I hoped to get a glimpse of the haemorrhoids that I was supposed to have, but saw nothing. I did see something black that really stood out against the pink flesh. ‘What’s that?’ I said. Mr. W replied that it was nothing, just a speck. Then he jokingly said, ‘it’s not an animal.’ He knew that I was concerned about bugs. I have to say that I’d seen many of these black specks in the bath water as well as the bed and when magnified, they look like cotton balls. So I didn’t feel that it was nothing – more like something missed.
His Report said that he found no evidence at all of an infestation. I’d performed an enema two hours before the appointment. What’s the purpose of that? To sluice, out.
There was no mention of the black speck we both saw.
I must add that all the hospital doctors and nursing staff that I came into contact with during the various appointments, were all very kind and professional in their manner. However, none of them had a clue about the mysterious bugs.
In the days after the flexible endoscopy appointment and since having the enema, I was hoping that there would be no more bugs emerging from my bowel. But I was to be disappointed as debris was still coming out, although not as much as before. It was mostly pin-prick size cotton balls and other odd debris that I couldn’t identify. I was still having problems with an itchy scalp which I thought must be mites that had come with the bedbugs. There are many species of mites. Honey bees are dying off because of mite infections – so why not bedbugs? If they were infected with mites, that could explain why I only found dead ones in my bedroom when searching for them, also, it could explain their odd behaviour in crawling inside of me to lay eggs instead of laying them on the mattress, since I was told that is what they do. However, trying to get rid of the mites, I used various over the counter hair solutions from Boots Chemists but nothing seemed to work. Sometimes I felt things drop down onto my eyelashes and into my eyes. It felt like grit and I would have to bathe my eyes with Optrex. The mites seemed to settle everywhere, even in my nose and ears. I could feel them on my face and would use a cotton make-up pad applied with surgical spirits to cleanse it. When I examined the pad under a magnifier, there were black specks and fibres in red, black and blue, on it. I thought again that this was very odd.
By mid August I went on-line to search for information on mites and more importantly – how to get rid of them. I discovered the website of Kleen Green Natural Enzymes. This UK Company produces a formula of natural ingredients for clearing all kinds of pests from your body – NATURALLY. So I browsed the site to read their information and the customer reviews. I decided that this was just what I needed rather than using the Permethrin pesticide cream. I bought the smaller sizes of their products to test them out, which were a concentrated formula to be diluted and put into a spray bottle for use on the body after bathing and showering. I also purchased their special shampoo, a hair conditioner and a body wash. For inner cleansing they recommended Dyna Powder (Diatomaceous Earth) the food grade. Since my bugs went internal I thought I’d better have some of that too.
Natural Enzymes works differently to the pesticide creams and is non toxic. Soon after beginning this new treatment, I began to notice a difference and found that I was also gradually clearing the mites from my hair. I felt confident that I was making progress at last.
During my online research, I came across a book on Amazon. It was called, Natural Ways for Healing Mites and Morgellons, by Diane Olive. Apart from finding out about mites, I was curious to learn about ‘Morgellons’ as I’d seen it mentioned briefly in other reading matter, so I purchased the book as I needed all the information I could get.
After reading the book by an American author, Diane Olive, a ‘Morgellons’ sufferer, I began to realise that I was displaying symptoms as described by other sufferers mentioned in her book. I knew I had fibres coming out of my body, as I was seeing them in the bath water as well as in my bed and also from my facial skin. I also wondered if my hands were affected so I tested them by using a cotton make-up pad sprayed with Kleen Green, rubbing the backs of them and examining the pad under a magnifier. Sure enough, there were tiny fibres in red and black. I’d just completed a knitted garment for a great-grandchild arriving in October and wondered if the fibres had been transferred to it. I examined the garment under a magnifier and found several fibres in red and black amongst the stitches – as a result there was no way I could give it to a new baby.
From what I’d discovered, ‘Morgellons’ is very controversial since it is not recognised as a disease by the Medical Profession. They say it only exists in the heads of the sufferers – rea
Monday 30th November 2015
It had been several months since I last saw my doctor,
so...surely it wasn’t too soon for another visit just to update her on my bug condition. I wanted to let her know how I was coping and managing to treat myself and pass on new information I had. So I made an appointment to see her, taking with me some recent fibre specimens as well as a ’Kleen Green’ information leaflet. I also took with me ‘Diane Olive’s’ book that I’d read.
Dr. Y was not in a receptive mood that day. As soon as I entered the consulting room, she said, ‘oh...it’s you again.’ I guessed that I was in for another hard time! I don’t know why since I only wanted to be helpful by letting her know how I was treating myself and coping with this horrid affliction.
However, I informed her that apart from the bedbugs I was also affected with mites that were in my hair and getting into my eyes, ears and nose. Due to this I’d gone online to research them and discovered the ‘Kleen Green’ site and started using their products and was getting positive results. I went on to say that having read Diane Olive’s book about Mites and Morgellons, I suspected that I may have contracted the very controversial ‘Morgellons Disease’ as I was displaying the symptoms mentioned by various sufferers’ stories in Diane Olive’s book. When I mentioned fibres coming out of my skin, Dr. Y went off on a rant, trying to convince me otherwise. She decided not to look at the specimens I’d brought along, but noted the title of the book and accepted the Kleen Green information sheet. Afterwards I was given another pot of cream and dismissed since I’d taken up too much of her time already and she had other patients to see.
I’d already ordered another book from Amazon, which arrived two days after the Doctor’s appointment. It was called ‘How to Get Your Life Back From Morgellons & Other Skin Parasites.’ It was written and Published by an American author Richard Kuhns B.S. Ch.E NGH Certified.
Having already self-diagnosed that I may have contracted ‘Morgellons Disease’, I needed to know how to get my life back. I read the book and found out how the author, devised a special diet, which he called the ‘King Diet’. He discovered through trial and error over a decade, which foods activated the parasites and which ones did not. Since parasites feed off of your body they would not leave voluntarily so the aim is to purge them out of you by starving them to death. It sounds straight forward – but they’re stubborn creatures. So early in December, I started on a diet – cutting out all sugars and yeast and any processed foods and only consuming fresh and natural foods such as, fresh leafy vegetables, tomatoes and salads, all kinds of rice, sulphur foods such as eggs, raw onion and garlic. No fruits except bananas and lemons and to drink water only. It is alright to eat all kinds of meat but as I’m a vegetarian, I ate eggs for protein. Soon after starting this eating plan, the ‘Morgellons’ (fuzz balls) began dropping out of me while bathing or showering. At last I was seeing positive results. It was also advised to take the supplement, L-Glutathione Maximum strength and Vitamin C – 500mg as well.
In January 2016 I researched Morgellons online and discovered numerous sites but decided to print off a few pages from: ‘Morgellons UK – 2016 Campaign, which was set up by a group of health care workers who were concerned about the number of reports arising from across several counties. They wanted to raise awareness to the public and professionals about an emerging disease. I thought this information would be useful and reading through, it gives various symptoms of the disease as well as descriptions of the fibres and odd debris that comes out of the skin, which I could identify with. ‘Morgellons’ is also Systemic, which means it can affect all of the body’s systems. (For the first time ever at Christmas time when I was out in the cold weather, my fingers became numb and the tips turn black, even though I wore gloves. I note that poor capillary refill, Reynaud’s syndrome, is one of the symptoms.)
‘Morgellons’ sufferers may also test positive for Lyme’s Disease. Most people have heard of Lime’s disease – if, for example you’ve picked up a ‘tick’ that is carrying the bacteria, you are likely to contract the disease. I believe it can be treated with antibiotics. Similarly, if you are afflicted with insects such as bed bugs, head lice, ticks or mites that are carrying bacteria, then you may also contract ‘Morgellons’ Disease, which I unknowingly did However, most people have never heard about this newly emerging disease so obviously, there is no medical treatment available.
Sometime in late August after showering and applying the Natural Enzymes all over my skin with my hand, I felt gritty bits on my shoulders and after investigating, by rubbing a cotton-wool pad over the area, then examining it under a magnifier, I discovered that filamentous fibres were coming out. I’d also developed a kind of rash on my shoulders, chest and neck areas, which felt like coarse sandpaper when I rubbed my hand over it. I also developed a red scaly patch on my left shoulder, which still remains. The rash subsided a little over a few weeks but still remains on my neck and shoulders as well as on my back and waist area, which now feels like fine sand paper. These are called lesions and are signs of ‘Morgellons’ Disease.
I must say that this is the most bizarre thing I have ever experienced – it’s horrid and debilitating! So far it has cost me a fortune! Sufferers often have to live with this for many years before they are finally clear of it.
Throughout the following months, I’ve been continuing my regime of, special diet, bathing and spraying Natural Enzymes on my body and will continue to do so until such time it decides to leave me...
Where did the bed bugs come from? The incubation period for the hatching out of bedbugs is up to seventeen days. So...thinking back from when they hatched out from me, takes me to late February 2015 when I came into contact with the grizzly things. I believe that I could have picked them up from a pub/restaurant in Brighton, which was a rather rustic place with bare floorboards and tables, also very dim lighting – the sort of conditions that could harbour bedbugs – although, I’ll never know for sure.
Below is further information.
Morgellons UK – 2016 Campaign
Kleen Green Natural Enzymes
The Charles E Holman Morgellons Disease Foundation
Appointment Tips for Morgellons Patients
(Tips on Surviving Your Doctor Appointments)
Natural Ways for Healing Mites & Morgellons by Diane Olive
How to Get Your Life Back – From Morgellons and Other Skin Parasites by Richard Kuhns
P.S. I am not delusional!
Hope this helps others too.
Testimonial - Sharlene 23rd May 2018
Hi, my name is Sharlene. I don't know how long I've had this disease. But the real symptoms started to show about three months ago. In that time I've been to my doctors on numerous occasions and they have given me all sorts of stuff but nothing has really helped. It started with a bad itch on my arm then it started to move around my body bit by bit it got worse till my whole body was starting to itch in different areas one after another. The itch would move around. I felt crawling sensations, biting itchy feelings, just like I was being stung. It unbearable. I was doing research online and that's when I came across Natural Enzymes.
In the meantime, in this last month, I must have spent about four hundred pounds on different products with no real relief. I read up about Kleen Green. I spoke to Gabrielle at Natural Enzymes she was helpful and informative and it was nice to know your not on your own. I have been given tips on how to save and use the product with other solutions too, which I can use alongside the Kleen Green. But I think the main thing for me recovering and getting relief is Kleen Green.
I am now starting to recover and I can say I'm a lot better since using Kleen Green, it's an amazing product and natural too, it has really helped me.
I messaged Gabrielle and got talking to her and have since rung her on numerous occasions. I'm really grateful as she has been so supportive and she kindly put me in touch with a few lovely people who are going through the same skin problems as I have been but are now are well down the road to recovery. Thank you so much to all those who have helped me you're amazing. I can't mention names but I hope they know I am thankful to them xx
I would now be willing to help anyone going through this as it's a terrible thing and so upsetting that there's nothing being done about it in this country.